Redmond is free! On December 19, 2019, we were able to remove the g-tube permanently.

I have a guest post today over at the awesome Down syndrome blog, https://www.cedarsstory.com/5-tips-for-moms-of-gtube-babies/

When Redmond had been home from the hospital for 10 short days, we found ourselves back in the ICU with him.

I was able to test out my healing from PTSD through an unexpected challenge recently.

Plans. I’m beginning to wonder why I bother to make them at all.

When I found out my son had Down syndrome, I was in shock. It felt like the whole world went dark and my life was over.

When I was trying to wrap my mind around the words I’d been told about my newborn son, it was more than I could bear.

My Dad used to love to “tackle the waves” with me when I was a kid.

I knew there would be hard days, but I had no idea just how far beyond myself those days would take me.

My son has been the one in the hospital. But I've been the one breaking.

I’ll never forget my shock on that first day in the NICU with Redmond

One year ago this week was the most terrifying and awful time in my life.

My son, Redmond, is 11-months old and thriving.

As of November 13, there are NO tubes on his face.